Ethical Issues in Implementing National-Level Health Data Warehouses in Developing Countries

摘要：

　　National Health Data Warehouses(NHDWHs)promise to improve individual and population health.These systems are now increasingly being deployed in low-and middle-income countries(LMICs),given increased recognition of the value of data analytics in informing decision-making.However,ethical issues relevant to implementation of NHDWHs in LMICs remain largely ignored or,at best,inadequately addressed.In this paper,we highlight and critically analyze several of the key ethical issues,including privacy,informed consent and trust,confidentiality and security,secondary data use,sustainability and implementation validity,risk-benefit ratio,governance and conflict of interest,justice,equity,access,and collaborative partnerships.We then provide a set of guiding principles and points to consider for countries and implementers to guide further decision-making around ethics of implementing NHDWHs within LMICs.

关键词： Ethics Information Systems Developing Countries

作者: Milka B.Gesicho Troy D.Moon Elizabeth Heitman Martin C.Were

作者单位: Institute of Biomedical Informatics,Moi University,Eldoret,Kenya Vanderbilt University Medical Center,Vanderbilt Institute for Global Health,Nashville,TN,USA Program in Ethics in Science and Medicine,University of Texas Southwestern Medical Center,Dallas,TX, Institute of Biomedical Informatics,Moi University,Eldoret,Kenya;Vanderbilt University Medical Cente

会议类型: 国际会议

会议名称: 第十六届世界医药健康信息学大会((MEDINFO2017)、第二届世界医药健康信息学华语论坛(WCHIS 2017)、第15届全国医药信息学大会(CMIA 2017)

会议地点: 苏州

会议语种:英文

页码: 718-722

在线出版日期: 2017-08-21（万方平台首次上网日期，不代表论文的发表时间）