Surveying a New Multi-Institution Clinical Data Research Network

摘要：

　　Cultivated by the Patient-Centered Outcomes Research Network(PCORnet),thirteen regional clinical data research networks(CDRNs)are taking shape across the U.S.The PCORnet common data model was carefully planned,and the data marts assembled by the more than 80 data-contributing institutions(nodes)are undergoing,in 2016-2017,a series of data characterization cycles.PCORnet will adjudge each nodes— and thereby,in a significant way,each CDRNs—readiness or unreadiness for multi-institution research.Certifying each nodes quality and fidelity is of course essential.But in understanding network readiness there is an additional,vital dimension—one that has received too little attention.It is the development of knowledge about the nature of a CDRNs data,in its federated sense.With visualizations,how might one grasp the meta-data of a CDRN? We outline an approach that builds upon the HealthLNK Data Repository,a forerunner to the Chicago Area Patient-Centered Outcomes Research Network(CAPriCORN)CDRN.

关键词： Patient Outcome Assessment Metadata Electronic Health Records

作者: Marc Rosenman Margaret Madden Elissa Oh Satyender Goel Abel Kho

作者单位: Center for Health Information Partnerships,Northwestern University,Chicago,Illinois,USA;Department o Center for Health Information Partnerships,Northwestern University,Chicago,Illinois,USA Center for Health Information Partnerships,Northwestern University,Chicago,Illinois,USA;Department o

会议类型: 国际会议

会议名称: 第十六届世界医药健康信息学大会((MEDINFO2017)、第二届世界医药健康信息学华语论坛(WCHIS 2017)、第15届全国医药信息学大会(CMIA 2017)

会议地点: 苏州

会议语种:英文

页码: 935-939

在线出版日期: 2017-08-21（万方平台首次上网日期，不代表论文的发表时间）